Itâ€™s been a bad day for 6-year-old Maddie Gillespie if she comes home from school with just one sticker.
Every time she accomplishes an assigned task, her teacher places a star on a sticker board.
â€œMy child learns from more visual cues versus just being told and given a directive,â€ said Randi Gillespie, her mom and family coordinator for the National Association for Down Syndrome. â€œIf she comes home with a whole panel full of stickers, she knows itâ€™s been a good day.â€
But her daughterâ€™s needs as a visual learner werenâ€™t always met.
Maddie Gillespie was born with Down syndrome â€“â€“Â a genetic disorder described by the Mayo Clinic as one that causes lifelong mental retardation, developmental delays and one that varies in severity â€“â€“Â which, before moving schools, led some special education teachers to treat her the same as any other child with the disorder.
â€œJust because my kid has Down syndrome, and the kid next to her has Down syndrome and they look the same, doesnâ€™t mean they learn the same. All children learn completely different,â€ she said.
The condition is the most common genetic cause of intellectual disability and affects one in every 700 newborns, including about 6,000 individuals in Colorado.
Until the year 2000, researchers within the field of developmental sciences told educators to take a homogenous, â€œone size fits allâ€ approach to teaching those with intellectual disabilities, said Deborah Fidler, a researcher in the Department of Human Development and Family Studies at CSU.
But she, alongside fellow researcher Lisa Daunhauer, recently received an $800,000 grant from a branch of the Department of Education to study how individuals with Down syndrome are predisposed to unique learning styles based on other genetic factors. Those with Williams or Fragile X syndrome, for example, predisposes children to very distinct areas of learning.
â€œIn the world of developmental science, weâ€™ve appreciated these developmental differences over a decade or two. Weâ€™re moving beyond a one-size-fits-all approach and toward a more tailored approach to special education,â€ she said. â€œThat way, we can get much more innovative about teaching them.â€
The duo applied for the grant in June of 2010 and survived a hypercompetitive application process to receive the funding in April of 2011. A panel of 20 experts in the field of developmental science reviewed Filder and Daunhauerâ€™s proposal alongside stacks of competing applications and agreed their suggested study would best further public knowledge of Down syndrome.
The funding will be used to bring families in for lab visits and administer play-based tasks that will measure this cognitive domain of executive function, Daunhauer said. The money will also be used to gather information from parents and teachers, â€œSo we can see a full picture of what these skills look like â€¦ and how these skills are being used.â€
â€œAs we get outcomes, weâ€™ll be sharing them in peer review journals, conference presentations,â€ she added. â€œWeâ€™ve definitely offered our services informally as well.â€
News of research explaining diversity in learning styles among children with Down syndrome is welcome to Gillespie, whose experience with special educators has left her questioning their expertise in the field of developmental science.
â€œIn general, across the board, they just donâ€™t have up-to-date and accurate information,â€ she said. â€œAnd from a parent point of view, itâ€™s very frustrating.â€
Senior Reporter Andrew Carrera can be reached at firstname.lastname@example.org.
- Interested in the study? Contact:
Prof. Deborah Fidler
Prof. Lisa Daunhauer